The development of pediatric oncology-hematology in the Russian Federation: the experience of collaboration between the National Society of Pediatric Hematologists and Oncologists and the National Medical Research Center
https://doi.org/10.21682/2311-1267-2019-6-3-12-25
Abstract
The basis for constructing a vertically integrated management system in the healthcare sector in the Russian Federation is the model of functioning of national centers. One of the key components in achieving success is the interaction of the national center with a leading national society. The aim of the article is to present the experience of joint work of the National Society of Pediatric Hematologists and Oncologists (NSPHO) with the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology in the field of development of pediatric oncology-hematology in the Russian Federation. In order to accomplish the task of building a system for organizing medical care for children in pediatric oncology-hematology, a comprehensive development program was implemented, which included collecting data on the structure of the service through questionnaires in the regions, obtaining expert opinion and the subsequent creation of a service passport using data visualization. In addition, the experience of creating professional standards and the concept of a unified approach in the field of training in the specialties “Pediatric Oncology” and “Hematology” using the technology of continuing medical education are reflected. The result of the work was the formation of a single plan for the organization of the service of pediatric oncology-hematology, developed by the NSPHO in conjunction with the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology with the support of the National Medical House and under the leadership of the Ministry of Health of Russia.
About the Authors
K. I. KirgizovRussian Federation
Cand. of Sci. (Med.), Executive Secretary of Regional Public Organization National Society of Pediatric Hematologists and Oncologists,
Deputy Director for Scientific and Educational Work of Research Institute of Pediatric Oncology and Hematology at the N.N. Blokhin National Medical Research Center of Oncology, Ministry of Health of Russia
room 16, room XXVI, Bldg. 5, 4 Tagilskaya St., Moscow, 107143
S. A. Kogan
Russian Federation
Cand. of Sci. (Med.), Physician-Methodist of the Scientific and Methodological Department of Translational Medicine, Institute of Management and Telemedicine Technologies
1 Samory Mashela St., Moscow, 117997
Ya. A. Erdomaeva
Russian Federation
Research Doctor of the Scientific and Methodological Department of Translational Medicine, Institute of Management and Telemedicine Technologies
1 Samory Mashela St., Moscow, 117997
G. M. Muftakhova
Russian Federation
International Project Coordinator of Regional Public Organization National Society of Pediatric Hematologists and Oncologists, Head Physician Research Institute of Pediatric Oncology and Hematology of N.N. Blokhin National Medical Research Center of Oncology, Ministry of Health of Russia
room 16, room XXVI, Bldg. 5, 4 Tagilskaya St., Moscow, 107143
T. G. Shlyakhtina
Russian Federation
Leading Specialist of the Scientific and Methodological Department of Translational Medicine, Institute of Management and Telemedicine Technologies
1 Samory Mashela St., Moscow, 117997
D. V. Birlyukova
Russian Federation
Cand. of Sci. (Med.), Specialist of Regional Public Organization
room 16, room XXVI, Bldg. 5, 4 Tagilskaya St., Moscow, 107143
G. I. Serik
Russian Federation
Project Manager of Regional Public Organization
room 16, room XXVI, Bldg. 5, 4 Tagilskaya St., Moscow, 107143
G. A. Novichkova
Russian Federation
Dr. of Sci. (Med.), Professor, General Director
1 Samory Mashela St., Moscow, 117997
S. R. Varfolomeeva
Russian Federation
Dr. of Sci. (Med.), Professor, Executive Director of Regional Public Organization National Society of Pediatric Hematologists and Oncologists, Deputy Director for Research and Clinical Work – Director of the Research Institute of Pediatric Oncology and Hematology of N.N. Blokhin National Medical Research Center of Oncology, Ministry of Health of Russia
room 16, room XXVI, Bldg. 5, 4 Tagilskaya St., Moscow, 107143
A. G. Rumyantsev
Russian Federation
Academician of the Russian Academy of Sciences, Dr. of Sci. (Med.), Professor, President of Regional Public Organization National Society of Pediatric Hematologists and Oncologists,
President of the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology, Ministry of Health of Russia, Chief Freelance Pediatric Oncologist and Hematologist of the Ministry of Health of Russia;
room 16, room XXVI, Bldg. 5, 4 Tagilskaya St., Moscow, 107143;
1 Samory Mashela St., Moscow, 117997
References
1. Концепция развития здравоохранения Российской Федерации до 2020 г. [Электронный ресурс]: http://www.oncology.ru/service/national_program/program/2010/concept_2020.pdf.
2. Key Studies in Medical Education from 2017: A Narrative Review. [Электронный ресурс]: https://www.ncbi.nlm.nih.gov/pubmed/30611896.
3. Poyiadjis S., Wainwright L., Naidu G., Mackinnon D., Poole J. The Saint Siluan warning signs of cancer in children: Impact of education in rural South Africa. Pediatr Blood Cancer 2011;56:314–6. doi:10.1002/pbc.22853.
4. Stubbings S., Robb K., Waller J., Ramirez A., Austoker J., Macleod U., Hiom S., Wardle J. Development of a measurement tool to assess public awareness of cancer. Br J Cancer 2009; 101 Suppl 2(Suppl 2):S13–7. doi: 10.1038/sj.bjc.6605385.
5. Hudson M.M., Link M.P., Simone J.V. Milestones in the curability of pediatric cancers. J Clin Oncol 2014;32(23):2391–7. doi: 10.1200/JCO.2014.55.6571.
6. Howard S.C., Metzger M.L., Wilimas J.A., Quintana Y., Pui C.H., Robison L.L., Ribeiro R.C. Childhood cancer epidemiology in lowincome countries. Cancer 2008;112(3):461–72. doi: 10.1002/cncr.23205.
7. Sankila R., Martos Jiménez M.C., Miljus D., Pritchard-Jones K., Steliarova-Foucher E., Stiller C. Geographical comparison of cancer survival in European children (1988–1997): report from the Automated Childhood Cancer Information System project. Eur J Cancer 2006;42(13):1972–80. doi: 10.1016/j.ejca.2006.05.013.
8. Murad A.A. Using geographical information systems for defining the accessibility to health care facilities in Jeddah City, Saudi Arabia. Geospat Health 2014;8(3):S661–9. doi: 10.4081/gh.2014.295.
9. Mattos A.S., Aguilera J., Salguero E.A., Wiesner C. Pediatric oncology services in Colombia. Colomb Med (Cali) 2018;49(1):97–101. doi: 10.25100/cm.v49i1.3377.
10. Rumyantsev A.G. Acute myeloid leukemia in children. Prospects for the optimization of treatment (review). Rossiyskiy zhurnal detskoy gematologii i onkologii = Russian Journal of Pediatric Hematology and Oncology 2017;4(1):30–6. (In Russ.) doi: 10.17650/2311-1267-2017-4-1-30-36
11. Baranov A.A., Albitsky V.Yu., Ivanova A.A., Terletskaya R.N., Kosova S.A. Trends and the health status of the child population of the Russian Federation. Rossiyskiy pediatricheskiy zhurnal = Russian Pediatric Journal 2012;6:4–9. (In Russ.)
12. Cook G., Krulwich R. The Best American Infographics 2016 (The Best American Series) Paperback – Mariner Books/October 4, 2016. 176 p. [Электронный ресурс]: http://www.houghtonmifflinbooks.com/mariner.
13. Arena R., Smirmaul B.P.C. Infographic: The need for a global healthy living medicine strategy. Br J Sports Med 2019;53(18):1193–4. doi: 10.1136/bjsports-2018-099696.
14. Ebrahimabadi M., Rezaei K., Moini A., Fournier A., Abedi A. Infographics or video; which one is more effective in asthmatic patients’ health? A randomized clinical trial. J Asthma 2018;5:1–8. doi: 10.1080/02770903.2018.
15. Scott H., Adams J., Osborne S., Jenkins E., Oliver C.W., Baker G., Mutrie N., Kelly P., Fawkner S. Infographic: Tomorrow’s doctors want to learn more about physical activity for health. Br J Sports Med 2017;51(8):624–5. doi: 10.1136/bjsports-2016-096806.
16. Crick K., Hartling L. Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews: Infographics and Critical Appraisals. PLoS One 2015;10(10):e0140029. doi: 10.1371/journal.pone.0140029.
17. Moore D.E. Jr, Green J.S., Gallis H.A. Achieving desired results and improved outcomes: integrating planning and assessment throughout learning activities. J Contin Educ Health Prof 2009;29(1):1–15. doi: 10.1002/chp.20001.
18. Lipner R.S., Hess B.J., Phillips R.L. Jr. Specialty board certification in the United States: issues and evidence. J Contin Educ Health Prof 2013;33 Suppl 1:S20–35. doi: 10.1002/chp.21203.
19. Brennan T.A., Horwitz R.I., Duff y F.D., Cassel C.K., Goode L.D., Lipner R.S. The role of physician specialty board certification status in the quality movement. JAMA 2004;292(9):1038–43. doi: 10.1001/jama.292.9.1038.
20. Fallah P.N., Bernstein М. Unifying a fragmented effort: a qualitative framework for improving international surgical teaching collaborations. Global Health 2017;13(1):70. doi: 10.1186/s12992-017-0296-7.
21. Buttigieg S.C., Schuetz M., Bezzina F. Value Chains of Public and Private Healthcare Services in a Small EU Island State: A SWOT Analysis. Front Public Health 2016;4:201. doi: 10.3389/fpubh.2016.00201.
22. Niederwieser D., Baldomero H., Szer J., Gratwohl M., Aljurf M., Atsuta Y., Bouzas L.F., Confer D., Greinix H., Horowitz M., Iida M., Lipton J., Mohty M., Novitzky N., Nunez J., Passweg J., Pasquini M.C., Kodera Y., Apperley J., Seber A., Gratwohl A. Hematopoietic stem cell transplantation activity worldwide in 2012 and a SWOT analysis of the Worldwide Network for Blood and Marrow Transplantation Group including the global survey. Bone Marrow Transplant 2016;51(6):778–85. doi: 10.1038/bmt.2016.18.
23. Guide to cancer early diagnosis. Женева: Всемирная организация здравоохранения, 2018. Лицензия: CC BY-NC-SA 3.0 IGO. [Электронный ресурс]: https://www.who.int/en/.
24. Martei Y.M., Chiyapo S., Grover S., Hanna C., Dryden-Peterson S., Pusoentsi M., Shulman L.N., Tapela N. Methodology to Forecast Volume and Cost of Cancer Drugs in Low- and Middle-Income Countries J Glob Oncol 2018;(4):1–8. doi: 10.1200/JGO.17.00114.
25. Al Lamki Z. Improving Cancer Care for Children in the Developing World: Challenges and Strategies. Curr Pediatr Rev 2017;13(1):13–23. doi: 10.2174/1573396312666161230145417.
26. Cancer control: diagnosis and treatment. WHO Guide for effective programmes. Geneva: World Health Organization, 2008. [Электронный ресурс]: http://apps.who.int.
Review
For citations:
Kirgizov K.I., Kogan S.A., Erdomaeva Ya.A., Muftakhova G.M., Shlyakhtina T.G., Birlyukova D.V., Serik G.I., Novichkova G.A., Varfolomeeva S.R., Rumyantsev A.G. The development of pediatric oncology-hematology in the Russian Federation: the experience of collaboration between the National Society of Pediatric Hematologists and Oncologists and the National Medical Research Center. Russian Journal of Pediatric Hematology and Oncology. 2019;6(3):12-25. (In Russ.) https://doi.org/10.21682/2311-1267-2019-6-3-12-25